Cranky Day
Wow, I was cranky today. I started the day off much less smiley to my technicians. I couldn't help but think about the fact that for three days they lined me up on the wrong dot. I wondered how they could screw that up, and the more I thought about it, the more annoyed I got.
To start off each treatment, they first line up my side dots into the molding to make sure that my back is straight. Then they take an x-ray to see if my guts are in line. Then, when all is clear, the buzzer comes on and it radiates me. One of the robot arms actually has to swivel around me a bit, because I think they shoot me from about 5 different angles. Once that is done, they move on to the electron treatment of my sternum. There are three dots in the center of my chest. The one they are supposed to use is the middle one, but somewhere along the line on Tuesday through Thursday last week, they lined me up using the top dot. I really don't get that, and I really don't get why it had to be three days in a row. They do not do an x-ray of that, because the electron treatment does not pass through my whole body. Therefore, there is no backup check to see if they lined me up correctly. Once they radiate that for a little bit, then it is time for the hip.
Now I think I am a unique case because they have to radiate two parts of my body that are pretty far apart. I would assume that normally people just get a prostate or just a hip or just a leg or something. But the fact that I have two parts radiated, relatively far apart, means that they have to move my nekked carcass up towards my head and to my right so the machine can reach me. They have to do this EVERY TIME. However, they do not write it down, nor do they remember. They re-solve this problem about twice a week. Somehow they can line up my hip dots without moving my body, then they go in the back and have to come back once they realize that they didn't move me up first before lining up my dots. Today I told them that they have to move me up higher and they ignored me, then they went in the back and said they are having some computer glitch so I lay there nekked and motionless while they go try to figure it out. Then they come in about 15 minutes later and say that "to fix the computer glitch, we are going to have to move you up." I wondered to myself if they remembered that I had told them that first. On Monday I am going to wonder out loud to them.
This is all an appropriate way to end my treatment. Remember that I started it all off with an egotistical doctor that gave me a percentage that it was 90% not lymphoma? And now I finish with a few doses of radiation to the wrong place. And plus, I have to go in next week very begrudgingly and get my last three doses to correct the three-day error. And all this with probably some low blood cell counts and probably with a continuing esophogitis that does not allow me to eat comfortably. I haven't felt this frustrated since my wheelchair days.

6 Comments:
Dear Nephew:
Remember that you are your own physician first and foremost (biblically speaking, so it must be true). You are the only person who knows everything that has been done to you and you are the person in control. Do not be afraid to speak out; once, twice, thrice - whatever it takes to get their attention. It is your body - get up if you think they are wrong and tell them so until they listen. Bottom line: mistakes on your body are crucial only to you and you do have the right to speak out loud and louder if necessary.
You are in our prayers every day, with love, Aunt Terrie
5:28 AM
well, im very aware that you had a cranky day. and i would be too if they did that to me. THEN i would be mad like youre always telling me to get. and your tattoo on your chest is trippy! (haha trippy, im so funny). its kinda cool though. although not NEARLY as cool as the tats me and coca and marissa have. you were pretty much back to your normal self today though, imitating my mistakes with completely mocking, ugly facial expressions. no jumping for you by the way. and i'll tell you why i took those pictures monday. laterrrr...high five, pound, pkooshaself;kjase (thats the explosion part).
2:49 PM
yes, i must agree, charlenes and marissas and my tats were cooler than yours. but maybe if we're feeling charitable you can have a Spice Girl tattoo as well. :-) you didnt seem all that cranky to me, which makes you either a great actor or just great at getting past all that stuff, so either wa y you're pretty awesome lol.
3:35 PM
That must have been a bad trip for you, dude!
11:25 PM
THIS SOLICITATION HAS BEEN PERSONALLY APPROVED BY JASON:
Julia and I are involved in a benefit for Cancer at our health club, called the "Tour for a Cure". (Actually, it's a benefit AGAINST cancer....) For every dollar we collect, the health club matches, dollar for dollar. All we have to do is "spin" for three hours on October 20, turn in what we've collected, and the health club will match.
Julia and I know way too many people with cancer, the number of people we know with this disease has multiplied more than we thought possible in the past year. Not everyone we know has as a good a chance of beating it as Jason does.
As Jason eloquently put it when I asked him if I could post here: "Cancer Sucks", and he likes the thought of people drowning in oceans of my sweat to fight cancer.
If you're interested in donating, make out a check to the "American Cancer Society" and send it to:
Chuck and Julia Fannin
1125 Longshore Drive
San Jose CA 95128
(Please send it by October 20, if possible)
If you want to know more, you can check this website: http://www.courtsideclub.com/web/site/event.jsp?event_id=789 (or email us at cjzilla@pobox.com )
Thanks,
Chuck and Julia Fannin
END OF SOLICITATION PERSONALLY APPROVED BY JASON
P.S. Jason, I'm not impressed by your body hair.
6:56 PM
Jas, the last thing I would ever consider your reaction to all this is 'cranky'. You have miles and miles of patience, and the docs there should be thanking you for that. If they were unlucky enough to ever have someone of my temperament there, lets just say they would need regular physicians to remove the robot arms from their derrieres! At least you got some free tattoo's! I had to pay big bucks for mine, and their not even as cool as yours! Stay strong bro, only a couple more days! - J
9:13 AM
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