This is my blog about my medical journey through Lymphoma. I was diagnosed April 11, 2006. Currently, I am in remission with a high chance of cure. It was non-Hodgkins Lymphoma, specifically Diffuse Large B-cell Lymphoma. The tumors ended up being in my hip, my sternum and my backbone. I have left the blog up for anyone to read, and I also use it to remember all I went through. Because of all the drugs and stress, some of it is foggy, so it is fun to go back and see what I went through!

Monday, May 08, 2006

Hemangiomas or Neoplasms?

I saw a Lymphoma specialist today, Dr. Advani. She will help coordinate most of my care, even though the treatment will be administered by Palo Alto Medical Foundation. She makes a lot of sense, and is extremely good. Her office is in this pristine, brand-new Stanford Cancer Center. There were tons of bald heads and face masks funneling through, but I was still just about the only person in a stinkin wheelchair. Dr. Advani explained that only 5% of the patient population at Stanford has Primary Lymphoma of Bone (PLB) the way I do, so I guess I am special. She explained that in these rare cases they have a very high success rate. She reviewed my recent MRI with me. The new spots on my MRI are very small, the one on my back is 11mm, the sternum even smaller. It is possible that the spots are merely hemangiomas (birthmarks), even though they are concerning. We will do another round of chemo, then we will see if it shrinks. If it shrinks, we will know the spot was a tumor, and therefore I was stage IV, and therefore I will have at least 6 rounds of chemo (and I may need spinal taps). If the spots stay the same, we will probably say that the spots were hemangiomas, and therefore we will know I was in stage Ie, and therefore I would probably only get 4 rounds of chemo. After everything, I will get radiation.

I also learned that I will probably be non-weightbearing on my right hip for the duration of chemo and radiation. So, I'll be in a wheelchair or on crutches for quite a while. The good thing she said is that even if I am stage IV, her conservative estimate is that I have a 75-80% chance of cure. Pretty good odds to bet on.

2 Comments:

Anonymous Coca said...

well, here's to hoping they're not tumors! i've got all the nuns at oakwood praying 4 you (haha, remember that?). anyways, it's nice to know you're in such capable hands--stay positive! :-D
Always,
Coca

4:51 PM

 
Blogger Cov said...

I'm "all in" with a 70% chance. Good poker odds. :-) And i'm definatly praying for the birthmarks to be everywhere, nothin but birthmarks baby! anyhoo, Go spurs, and Go Trip! Much love from SA town. -Cov-

5:31 PM

 

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